For the attention of Health Minister Leo Vardaker.
Dear Minister Varadkar
My son, Henry Bolger O’Daly, was diagnosed pre-natally 5 years ago as having Hypo-Plastic Left Heart Syndrome. He was born with the entire left-hand side of his heart missing. He has endured a series of arduous and painful surgeries in order to make his remaining right-hand side of his heart viable until such time that he is a suitable candidate for full heart transplantation. This will happen when he is older, please God. His is an alternative circulatory system, resulting in diminished blood oxygen levels. As a result, he gets very tired and sometimes ill from pedestrian levels of activity. Obviously, his condition is a life-long, incurable and chronic congenital heart defect. In lesser words, my son will never get better.
We applied to retain Henry’s medical card and just this morning we found out that it has been REFUSED. I fail to see how he could not be granted a discretionary medical card, given the fact that his monthly medication expenses are exorbitant. We obtained a letter from his cardiologist, Dr. Orla Franklin (Crumlin), to support his medical card application. The content of this letter sets out in no uncertain terms the gravity of Henry’s condition and is explicit and detailed. This alone should set alarm bells ringing in the Health Service that this citizen, my son, Henry Bolger O’Daly absolutely should be granted a medical card.
In the short time that he has been alive, Henry has experienced a great deal of trauma which is now manifesting itself in his everyday life. He is a very anxious child and is currently attending a play therapist, the cost of which is not covered by the medical card. We cannot afford to pay the monthly DPS charge and pay for therapy.
Can you please give me a call? I am desperately seeking your guidance in the matter.