Twitter and LinkedIn posts from an account with the name Daniel Nicolson which have since been deleted
Meanwhile…
On Twitter…
Never thought I’d see “Who’d like to buy my whole genome sequences on 30,000 Irish people” on… LinkedIn?
This appears to represent the sale of 30,000 Irish genomes to the highest bidder, without oversight from the Irish people.
Sorry, but this is not right. https://t.co/qsiNdHCK0K
— John Greally (@EpgntxEinstein) August 30, 2019
Deleted? That’s reassuringly professional.
I still had the LinkedIn and Twitter posts open, so attached are screenshots from @drnicolson pic.twitter.com/uJfLpcKR32
— John Greally (@EpgntxEinstein) August 30, 2019
I saw it. I've a standing offer to act for free if anyone with MS wants me to make Data Protection queries on their behalf as to whether their genome is in this cohort (and how).
— Simon McGarr (@Tupp_Ed) August 30, 2019
Anyone?
Update:
See thread for screenshots (of deleted tweet) @SimonHarrisTD Can you assure patients that their genomic/clinical health data has not been transferred to Genomic Medicine Ireland without informed explicit consent following testing-treatment @HSELive @hseNCCP ?
👇 https://t.co/IJXoIw5MQy— Eileen OS (@eosull) August 30, 2019
But, but, but, shure didn’t that woman on the Marian Finucane show reassure us that it was all kosher [not that she was in any way challenged by Marian about what are now fairly established concerns]
https://twitter.com/MarianRTE/status/1147448383067623424
Also, do I sense the hand of Enda Kenny in his role as director at the Ireland China Institute in all of this?
I think you’ll also find the diseased hands of Bertie Ahern and Cyprian Brady.
https://www.pitchero.com/clubs/brandywinemensrugbyfootballclub/contact/contact-official-14367
Oh actually, it’s FG behind this, fupping up, it’s in their DNA.
https://www.genengnews.com/insights/using-powered-cohorts-to-speed-drug-discovery-and-development/
It’s in their jeans surely? (back pocket)
Well done John Greally, Simon McGarr and Bodger for exposing.
Needs full forensic investigation – how did Nicolson acquire such personal, valuable information ?
“Hi, everybody(‘s genomes)!!
“Hi! Dr. Nic(olson)!!”
I lolled.
I think this is a well constructed comment. and I had a wry thought to myself after I read it.
That’s brilliant :)
I bet this is one of the days Simon Harris wishes he stayed in DIT
As much as I hate evil pharma evil companies and there probably are privacy issues with this particular situation, this is how research gets done.
We can’t do ice bucket challenges and readathons and sponsored walks to raise money for research and then get mad when someone actually wants to do the research.
If we don’t want a private company to have control of this then where are the millions of euro that we could give to academia?
And a company would end up making the drug in the end anyway!