Tag Archives: CF

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This afternoon.

On the banks of the Grand Canal, Dublin.

Jillian McNulty, who has Cystic Fibrosis, holds a packet of Orkambi tablets.

It follows the announcement by Health Minister Simon Harris in the Dáil yesterday that an agreement has been reached between the HSE and Vertex Pharmaceuticals and that the CF drugs Orkambi and Kalydeco will be made available in Ireland.

Leah Farrell, of Rollingnews, writes:

Cystic Fibrosis Ireland’s 65 Roses Day appeal takes place tomorrow. Members of the public can lead there support by buying a purple rose from volunteers for €2, donating online at here or by completing a fundraising 65 roses challenge. The funding appeal aims to raise €100,000 for CF services and takes place as part of CF National Awareness Week this week.

Cystic Fibrosis Ireland

Previously: Seeing Orkambi

Leah Farrell/Rollingnews