Spinraza Approved


Members of Spinal Muscular Atrophy Ireland and their supporters outside Leinster House

HSE approves Spinraza after lengthy campaign by patients (Paul Cullen, The Irish Times)

Pic: SMA Ireland

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4 thoughts on “Spinraza Approved

  1. eoin

    How much?

    In the UK, the manufacturer Biogen was looking for £400,000 a year (€445,000) when it was turned down by the NHS. Last month, the NHS changed its mind and is now funding the drug but won’t disclose the cost.

    In Ireland,Biogen had been looking for €600,000 a year in the first year of treatment.

  2. GiggidyGoo

    The devil will, as usual, be in the detail. SMA rightly saying ‘we are still waiting for the full details of the approval’

  3. Dr.Fart MD

    not surprised with this chain of events. it’s how harris conducts his business, 1: hears about something positive. 2: welcomes it. 3. transpires that he hasn’t done any actual work to make the thing happen, just presumes his job is merely representative and doesnt have to do any work or follow up on what he promises, presumes once he’s said it, other people then enact it.

    for example see; cervical scandal, ~or~, literally any moment in his entire political career.

    laszy, do-nothing waster.

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