This afternoon.

Kildare Street, Dublin 2.

Protesters, including Cystic Fibrosis sufferer Jillian McNulty (above) outside Leinster House expressing dismay at the Health Service Executive decision to not fund the Cystic Fibrosis Orkambi tablet over ‘exorbitant charging’. The drug costs $259,000 a year in the United States.

Meanwhile, inside the Dáil chamber:

….Enda Kenny said there was a big difference between the €160,000 being sought per patient annually by Vertex (makers of Orkambi and the €30,000 value put on the drug by the National Pharmaceutical Agency.

Amid exchanges with the Opposition, Mr Kenny said he did not hear the company say it was prepared to come way down on the price.

“If they are prepared to come way down from €160,000 per patient, well then let us see what they are talking about,’’ he added.

Orkambi company charge ‘grossly excessive’, says Kenny (Irish Times)

Leah Farrell/Rollingnews

Update:

This afternoon.

Sinn Féin President Gerry Adams and Fianna Fáil leader Micheál Martin address protestors.

Leah Farrell/Roillingnews