— BBC (@BBC) February 6, 2019
— BBC (@BBC) February 6, 2019
Marie O’Halloran, in The Irish Times, reports:
A family who say they are unable to cope with a 16-year-old son with Asperger’s and Autism Spectrum Disorder have complained that the authorities have placed him in a homeless hostel rather than an appropriate care setting.
Tom, not his real name, said his son had a breakdown, and that the homeless shelter in Dublin city centre was not the appropriate place for him.
“He is kicked out at 9am and cannot go back in until 5pm,” said Tom, who is concerned about his son mixing with drug addicts.
… Their son was suffering from such bad anxiety and bullying that he did not go back into secondary school last year for transition year. About three weeks ago, while living with his mother “he went really bad, he just lost it”.
Tom describes his son’s anxiety attacks as “horrific”.
“It’s like dealing with Jekyll and Hyde. He was roaring and shouting and kicking walls and he didn’t know why. My son has a psychiatric problem. He needs help, and there is no help out there.”
Gardaí were called, and John was arrested. He was then placed in the homeless shelter on July 24th, and has been there since apart from one night when he went back to his mother’s house but again “lost it”.
A six year old Cork girl is to sacrifice 12 inches of blonde hair in order to help her sister, who has autism, to get an assistance dog.
In a gesture reminiscent of a scene from Little Women, Lauren O’Mahony will cut off her long blonde hair in order to raise funds for Autism Assistance Dogs Ireland (AADI) this May. Her five year old sister Amy has been diagnosed with autism and has been on a waiting list for an assistance dog for 10 months. She could be waiting up to three years before a dog is available for placement.
— ickle tayto (@ickle_tayto) April 16, 2012
1. The sound is reduced.
2. The lighting is set at a higher level.
3. No advertising or trailers.
4. A carer can go free.
5. Pre movie orientation for guests wishing to get familiar with the auditorium.
From Irish Autism Action
Today – World Autism Awareness Day – we’re celebrating the brilliant, challenging, amazing and truly special people who have autism (including my son, Arthur, above).
Contrary to recent, startling assertions autism is not a condition caused by bad parenting, it is a neurological condition. It cannot be ‘fixed’ but with the right interventions and supports, particularly during the first five years of life, people with autism can learn strategies that greatly help them realise their full potential.
Funding for support like this was never adequate but now, what little there is, is increasingly under threat. There is also a need to improve general awareness of the condition to lessen the stigma and lack of understanding that can make life needlessly difficult for people with autism.
However, today is a day for celebration above all. The fun, genius and fantastic perspective which autistic people bring into the world needs to be better appreciated.
Perhaps people will share some of their experiences on this thread?
Miriam Cotton, April 2, 2012
Dr. Tony Humphreys, author of that article (suggesting a link between parenting and autism) went on Ireland AM this morning to defend his claims and face unusually hostile questioning from presenters Sinead Desmond and Aidan Cooney.
Sinead Desmond: “I’m going to offer you initially a chance to apologise… Do you want to apologise for making that link [between parenting and autism]?”
Tony Humphreys: “Certainly I want to apologise for any hurt that I caused but in my article I actually did not blame parents at all. I never talked about cold parents; I never talked about refrigerator parents, and that idea of autism…”
Desmond: “You did specifically suggest that a lack of love could result in emotional difficulties which others refer to as autism… I know you have an issue with the label ‘autism’.”
Humphreys: “I have an issue with the label autism. I actually, I want to tell you something: I always had question about whether there was some genetic or biological basis to it…”
Desmond: “Lets go back to the parenting.”
Humphreys: “Yeah. I was discussing [Simon] Baron Cohen’s research there and I was wondering why did he look at the professions of parents who had children with autism right? And I was questioning why did he do that? Why did he need to do that, if he believed that autism is a biological problem? Why would he bother looking at people’s professions? And that’s where that arose from. I never – I mean I’ve been practising clinical psychology for 30 years; I’ve written 16 books right – in every single book I say this: no parent ever deliberately wants to block the progress of their child.”
Aidan Cooney: “Are you saying that subconsciously they want to block…”
Humphreys: “I think they’re not even unconsciously or subconsciously do they want to block it. Love is always present but come on, every one of us comes into our roles as marriage partners as friends in the workplace. My new book, Leadership With Consciousness, addresses the deep emotional processes that underlay the economic.”
Desmond: “I really want to pin you down, because…”
Humphreys: “I want to clarify that unconscious issue though. Everybody has unconscious defences. Everybody has emotional baggage. We don’t want that emotional baggage to block our marriages or block our relationships with our children. But unconsciously it does…”
Cooney: “You can’t mind-read whatever way you dress it up. How come then there are parents who have one autistic child and two who aren’t? How is that possible?
Humphreys: “Well it’s very possible because each child has a different mother; each child has a different father. If you look at a family of five, if we meet as adults for a reunion and we begin to discuss the family of origin, you could swear to god you’re hearing about five different families, because each child responds in their own unique way to the parent or the teacher. It’s not just parents – teachers had huge influence on us. And the word is influence, the word is not blame.”
Desmond: “But whether you’re going to blame or influence, you are ultimately saying that parents and teachers are causing that child to become what we label as autistic.”
Humphreys: “No they’re not trying to cause anything. What they’re doing their best is operating from their own fears and doing their best to cope with their own lives, and inadvertently –“
Desmond: “What causes autism then?”
Humphreys: “You see when you use the word autism you’re suggesting that it’s a fact. Autism is a theory, it is not a fact.”
Desmond: “I don’t want to get into that argument, I want to specifically…”
Humphreys: “But it’s an important argument.”
Desmond: “I understand that but what’s important is that, for parents, you have intimated that they have somehow caused their child to become autistic.”
Humphreys: “You see I didn’t use the word ‘cause’ right, and you’re putting words in my mouth. What I’m saying is that we all have emotional baggage; we inadvertently… if I have a parent who’s a perfectionist she developed that perfectionism as a child to withstand any possible…”
Desmond: “But you’re ultimately saying that parents…”
Humphreys: “But she’s not doing it consciously.”
Desmond: “You’re still blaming parents.”
Cooney: “OK so what you’re actually saying then is, never mind the child for the moment, let’s examine the parent’s issues. So the parent has to go through treatment. How do you unlock it otherwise? If the parent is carrying subconscious baggage…”
Humphreys: “When I work with children right, who are distressed right, I want to see what the child is communicating, because the child creatively creates their own way of communicating… it is a creative process that the child does. I mean I had one child whose parents were always fighting with each other. There was violence between them. He used to go under the stairs and sit in darkness for hours. He was protecting himself creatively, right. The parents didn’t realise they were having that effect. And if I got a hundred euros for every parent I have worked with that said ‘ I never realised that I was having that effect’.”
Desmond: “You’ve cited an extreme example of a violent relationship. Anybody who is allowing violence to be shown in front of their child should be very aware it’s going to have a damaging effect. But what we’re talking about are normal families. There’s no violence, there is nothing untoward going on. They have four or five children; one of them is autistic. As Aidan asked you, how can you explain that? They love them all the same.”
Humphreys: “Once two individuals interact it’s an individual relationship right. It’s a unique relationship. Every family is different and you do not know the complexities of any family from the outside in. But one of the things that is not being brought out here. I’m the messenger of what all the new research is saying.”
Cooney: “But some of those researchers have gone on radio and said you misquoted them. So why did they do that? Why did they say your article misrepresented them?”
Humphreys: “What was misrepresented right was my representation. I never talked about cold parents and I never talked about refrigerator parents. That is such a naïve simple explanation.”
Desmond: “So why are the parents of Ireland up in arms then?”
Humphreys: “Because of that misrepresentation.”
Desmond: “So they were not your words in the article in the [Irish] Examiner?”
Humphreys: “They were not my words ‘cold’ and they were not my words ‘refrigerator’.”
Desmond: “But what was printed in the Examiner, they were your words, yes?”
Humphreys: “Of course they were.”
Desmond: “And those words have caused this upset?”
Humphreys: “No what is…the words that I printed in my article were misrepresented on radio.”
Desmond: “I disagree entirely. We’ve had texts and emails because people read your article. They read your article Tony.”
Humphreys: “Very interesting thing. Many people who came on the radio had not read the article.”
Cooney: “We accept the point that some people didn’t read the article – they might have heard the radio show and whatever. Can you accept maybe that you didn’t consider the damage or the fallout from this article? There are people – hang on let me finish please. There are people struggling to get speech therapy… there are people struggling to get help and education and this bombshell could well set that back. It gives people who are cutting an argument to cut back.”
Humphreys: “This is not my bombshell. This is the bombshell of book after book that’s coming out. I wrote the article with good intentions, and the good intentions was to give information of the present understanding of autism. That was my intention.”
Cooney: “So why did two of the people that you quote rubbish your article?”
Humphreys: “No they didn’t rubbish the article; what they rubbished was the misrepresentation of my article which was that I talked about blaming parents. And I never in all my life have blamed parents. But I have been absolutely saddened by the response, because that was not the response I in any way expected. Can I read this to you? I need to do this…”
Desmond: “You say you are not blaming parents, but what are you saying then? What is the relationship to parents and a child who’s autistic? You’re not blaming them but what’s the relationship there?”
Humphreys: “There are many factors and Sami Timimi said it very clearly in his book. We need to look at the family narratives and we need to look at the community narratives; we need to look at the story of each child, cause each child has a different story.”
Desmond: “But you’re ultimately saying it’s environmental factors it’s the relationships that result in autism.”
Humphreys: “That’s what all the new research is saying. Can I just read…”
Desmond: “Ah, so that’s what you believe? That a child’s relationships with those around it causes autism?”
Humphreys: “Yeah but what I’m believing is backed up now by research.”
Desmond: “I don’t want to talk about someone else’s book.”
Humphreys: “But my article was based on this book.”
Desmond: “What you’re saying is that a child’s relationships with those around them causes autism.”
Humphreys: “No what I’m saying is a child’s response to the defensive behaviour of parents – the child creates its own response; the parents create their own response at an unconscious level”
Desmond: “That’s exactly what I just said; a child’s relationship to those around them causes autism. That’s your belief?”
Humphreys: “No the child’s response to those around them, right? We know from the work…”
Desmond: “A child’s response to those around them causes autism.”
Humphreys: “You see I don’t believe in autism. It causes a child to become distressed…. People who are being told that their children are autistic are being told that they have – let me finish – a biologically-based, genetic disease. There is no evidence for that. And let me read Timimi because I need to do this.”
Desmond: “Well others would disagree I’m sorry.”
Humphreys: “But sure I know that and that’s why we have a whole group of researchers saying ‘there is not such a condition’.”
Cooney: “So all medical evidence is off the bet. All bets are off in medicine then. It’s all psychological.”
Humphreys: “Well that’s what the books are saying now. Can I just read this please?”
[He reads]: ‘When we first started on this journey…. we didn’t predict our final destination. We have been stunned at the absence of any real science that supports either the narrow or the broad construct of autism; shocked at the ease with which academics and professionals alike have accepted the validity of the diagnosis; and alarmed at the potential implications of large numbers being diagnosed with autism.’”
Desmond: “Your statement that a child’s response to those around them is what is causing autism as it’s labelled. Can you not see how that statement leads parents to feel that you are blaming them? Because that is what’s at the nub of this.”
Humphreys: “You’re putting words in my mouth. A child’s response to the inevitable issues self-esteem issues that parents carry with them, their response is unique to them. They try to defend themselves from…”
Desmond: “Can you not see how what you just said leads parents to feel as if you’re blaming them? Can you not see that Tony? You can see it – do you understand it, yeah? Because you seem to miss it.”
Humphreys: “I’m not missing it.”
Desmond: “So you do understand why parents think…”
Humphreys: “Of course I understand but I’m not blaming them. But I’m saying the reality is that every one of us has emotional baggage and we influence and affect each other.”
Desmond: “I’ve met people with emotional baggage and I’ve met autistic children and they’re two very different things.”
Cooney: “Very different things of course. Anyway I don’t think we’re going to resolve it here.”
Desmond: “We did ask if you if would have this discussion with a parent on the sofa with you and you said no, you wanted to be here on your own. Why?”
Humphreys: Because I don’t want to get into an argument with somebody, right, who… it must have been so upsetting to suddenly realise that researchers – not Tony Humphreys, but more and more researchers are saying autism… Listen to this [he reads]: ‘The conclusion of our studies is that there is no such thing as autism and the label should be abolished’.”
From last week’s Irish Examiner.
Not available online and causing a stink on today’s LIveline
A team of researchers at Cambridge University is currently exploring the connection between high-achieving parents, such as engineers, scientists and computer programmers and the development of their children. Professor Simon Baron-Cohen, who is the director of the Autism Research Centre at the university, says there are indications that adults who have careers in areas of science and math are more likely to have autistic children.
In studies in 1997 and 2001 it was found that the children and grandchildren of engineers were more likely to be autistic and that mathematicians had higher rates of autism than other professions. What is shocking is that Dr Baron-Cohen and the team of researchers are one: assuming that autism is a scientific fact and, two: missing the glaringly obvious fact that if the adults they researched live predominantly in their heads and possess few or no heart qualities, their children will need to find some way of defending themselves against the absence of expressed love and affection and emotional receptivity.
After all, the deepest need of every child is to be unconditionally loved and the absence of it results in children shutting down emotionally themselves because to continue to spontaneously reach out for love would be far too painful.
Children’s wellbeing mostly depends on emotional security – a daily diet of nurture, love, affection, patience, warmth, tenderness, kindness and calm responses to their expressed welfare and emergency feelings. To say that these children have a genetic and/or neurobiological disorder called autism or ASD (autistic spectrum disorder) only adds further to their misery and condemns them to a relationship history where their every thought and action is interpreted as arising from their autism.
It is frequently the case that it is when these children go to school that their emotional and social withdrawal of eccentricities are noticed, mainly by teachers, who themselves can struggle with how best to respond to these children. An unconscious collusion can emerge between parents and teachers to have these children psychiatrically assessed so that the spotlight is put on the children and not their adult carers’ own emotional and social struggles. Regretfully, the relationship contexts of the childrens’ lives are not examined and their mature development is often sacrificed on the fires of the unresolved emotiuonal defences of those adults who are responsible for their care.
It is important to hold to the fact that these carers do not consciously block their children’s wellbeing, but the unconscious hope of children is that other adults (teachers, relatives, educational psychologists, care workers) that when they are emotionally and socially troubled, it is their adult carers who often need more help than they do.
Indeed, my experience in my own psychological practice is that when parents and teachers resolve their own fears and insecurities, children begin to express what they dare not express before their guardians resolved their own emotional turmoil.
A clear distinction needs to be made between the autism described by psychiatrist Leo Kanner in 1943 and the much more recently described ASD (autistic spectrum disorder, often referred to as Asperger’s syndrome). The former ‘condition’ was an attempt to understand severely emotionally withdrawn children, the latter concept, which is being used in an alarmingly and rapidly increasing way, is an attempt to explain children’s more moderate emotional and social difficulties. Curiously – and not at all explained by those health and educational professionals who believe that autism and ASD are genetic and/or neurobiological disorders – is the gender bias of being more diagnosed in boys (a ratio of four to one). This bias is also found with ADHD. Surely that gender phenomenon indicates the probability that boys are reared differently to girls and that due to social and cultural factors boys respond to the troubling behaviours of their adult carers in ways that are radically different to girls.
What is equally distressing is that, as for ADHD, a whole industry involving research, assessment, screening, education and treatment has been developed, despite the absence of any scientific basis or test for either the originally ‘detected’ autism or for the broader construct of ASD.
Sami Timimi, a consultant child and adolescent psychiatrist and two colleagues rigorously examined over 5000 research articles on autism and ASD and found no scientific basis for what they now refer to as mythical disorders. They outline their findings in their book ‘The Myth of Autism’ (2011). The conclusion of their indepth studies is that “there is no such thing as autism and the label should be abolished”.
The authors are not saying that the children are not emotionally and socially troubled. What they are saying is – and I concur with them – that focus needs to be on the relationship contexts of these children’s lives, and to take each child for the individual he or she is and to examine closely the family and community narratives and discover creative possibilities for change and for more dynamic and hopeful stories to emerge for both the children and their carers.
Autism Dr Tony Humphreys